On activities of abovementioned NGOs in Palliative care development in Ukraine (2006-2007) [Íîâîñòü äîáàâëåíà - 07.12.2007]
All-Ukrainian Council for patients rights and safety Association of medical workers All-Ukrainian Association of palliative care REPORT On activities of abovementioned NGOs in Palliative care development in Ukraine (2006-2007) Accordingly to the WHO statement (2002), palliative care – this is approach which aims to maximize the life quality of patients and their families facing the problem of the incurable illness. Looking at palliative care as one of the forms of the assistance to people, our organisation, with the support of different partners, among them, International Renascence Foundation, made such activities. Studying of the situation with the palliative care development in Ukraine Collaboration with the Ministry of Health, Ministry of social affairs and other authorities. Changing of the legislative base about palliative care Organizational events • Ukraine (Orthodox Church, Greek-Catholic Church, Roman-Catholic Church, Baptists Church, Lutheran Church etc) were done. The directions of the possible cooperation in palliative care were discussed. The result of the meeting was that the special prayers for those who needs palliative care in many parish churches of Ukraine were organised. Educational events o Since 2007, the Educational center on palliative care in Ukraine began its activities. The project of training course “Multidisciplinary team work in palliative care system” was created. Projects, supported by the International Renascence Foundation Title of the project Organisation which realised the project What was realised in the frameworks of the project Social Innovations in Palliative Care: Experience Exchange Between Moldova, Romania, and Ukraine Association of medical workers Analysis of the legal base on palliative care. Study visit to Moldova and Romania, meetings with palliative care experts from European, Roman and Moldova palliative care associations. During the visit, ways of engaging of public society and local administration representatives to the forming of national and regional palliative care programs were studied and discussed. Public assistance with the development of palliative care in Ukraine through development of regional programs of palliative care providing and creation of the project Governmental Conception of Palliative Care in Ukraine Creation of the mechanism of cooperation between the society, government and Supreme Council of Ukraine on forming governmental policy on drug circulation and HIV/AIDS counteraction Development of the international cooperation Prepared: Alexander Wolf, Palliative care Development Program Director, All-Ukrainian Council for patients rights and safety, + 38 (097) 14 17 456 (mobile), + 38 (044) 235 65 87
• The foreing experience of palliative care was studied.
• The analysis of legal base for palliative care was done.
• The palliative care implementation into Ukraine was substantiated.
• Experts of the Council provided the expert evaluation of the barriers of medical usage of opioids and psychotropic substances; the draft changes to the actual legal base was proposed to Ukrainian Government and Cabinet of Ministries.
On initiative of the All-Ukrainian Council for patients rights and safety and with the support of Ministry of Health, Ministry of social affairs the Order of MOH (# 201, issued on July 6, 2006) about the creating of the Interdisciplinary Task Force on palliative care. President of the Council for patients rights Prof. Y.Gubsky is the Co-Chairman of the Task Force. The Group unites representatives of the Ministry of Health, Ministry of Social Affairs, and Association of medical workers and Association of palliative care, All-Ukrainian Network of People LWHA, different Churches and individual experts. Actually, the Group consists of 30 Ukrainian and foreing experts.
• In Kharkiw, with the active participation of the Interdisciplinary Task Force, the City Working Group on palliative care was formed. Vice-President of the Council for patients rights and safety Dr. Wiktor Serdiuk is the Deputy to the Chairman of the Group. Forming of the Group and starting of the development of this project is the unique experience for Ukraine, since city council had allocated such a great sum of 600.000 $ for the development of this kind of services for the first time in Ukraine.
• The group of Ukrainian experts and representative of the MOH participated in the working visit to Moldova and Romania, which was organised by Association of medical workers in the frameworks of the East-East Program (International Renascence Foundation). The goal of the visit is the experience exchange in palliative care. During the visit, the meetings with workers of hospices, local administrative, leading representatives of European Association of Palliative care, associations of palliative care of Romania and Moldova were done.
• With the support of International Renascence Foundation the recommendations and guidelines about necessity of legal changes were done. Also, to this members of the Task Force contributed. They discussed the projects of documents which regulate activities of hospices and their staff. The projects of papers were proposed to Ministry of Health for consultation.
• Leading experts of the All-Ukrainian Council for patients rights and safety, All-Ukrainian Association of palliative care Mrs. Martyniuk-Gres, Mr. Alexey Datschenko, Mr. Oleg Bobrow the schemes of access to adequate opioids in Ukraine, alongwith the recommendation how to solve these barriers were created.• After the public discussion the Project of the Conception of palliative care development in Ukraine aroused. Project of the Conception as well as other materials were proposed to the attention of the leading experts in Ministry of health and other organisations.
• The draft of Palliative care development Strategy in Ukraine was created.
• In the collaboration with the representatives of Ukrainian Orthodox Church the Draft Paper on spiritual care in palliative care was created.
• ?n the collaboration with the greatest religious confessions of Ukraine, Federation of protestant Churches of France and other religious communities about the implementing of chaplaince in palliative care and generally in medical system in Ukraine.
• The expert (consultations) support to local administrations in palliative care development was proposed in Kharkiw, Lwiw, Cherkassy and Sevastopil.
Different questions were discussed then, mostly, about the coordination of activities in palliative care and forming of new palliative care staff. In the meetings about 50 experts from all parts of Ukraine participated.
• The collaboration with organisations which help PLWHA was began. Aim of cooperation: experience exchange and coordination of efforts in establishing new and better medical and social care in Ukraine.
• 4 September 2006 the working meeting with the representatives of different denominations active in• Our organisations participated in Public hearings in Ukrainian Parliament about the patients which suffer from cancer.
• The campaign about the drawing of public attention to the problem of the palliative care was started.
The cooperation with numerous mass-media from different regions of Ukraine and other countries was established.
o In the framework of the projects which are realised by Association of medical workers, agreements on cooperation between Wroclaw medical academy, Wroclaw palliative care society, Lodz medical academy, Lodz Hospice society, and All-Ukrainian Association of palliative care and Educational palliative care center, State educational geriatrics center etc was developed.
• Active participants of these programs will have an opportunity to be after the further trainings trainers themselves.
• Poland. In 2006-2007 2 projects on palliative care education are realised. The education would be provided by specialists of Lodz and Wroclaw Societies of palliative care. In the projects, educating of ukrainian workers in Poland is foreseen as well as working meetings, round tables, simposia, and training seminars in Kyiv, Odessa, Lwiw, Iwano-Frankiwsk, Sevastopol.
• Moreover, numerous contacts with leading experts on access to opioids and palliative care in general are made. These experts work in Canada, Albania, Kazahstan, Australia, France, Italy, Slovak Republic, Hungary, Moldova, Romania, Russia, Bulgaria, Serbia, Macedonia etc.
The public discussion of the State Conception of palliative care development was done. The project of the Conception, after the discussion together with both national and international experts was proposed to organs of the executive and legislative power.All-Ukrainian Council for patients rithts and safetyProviding of the barriers evalutaion of the access to opioids for Ukrainian patients. The report on barriers and reccomendations on their overcoming was proposed to responsible bodies. Transborder cooperation in the implementation of the palliative care in Eastern Europe Association of medical workers
• The realisation of the project encourages improvements in the Draft Statute for Hospice Care and the Standards of Palliative Care in Ukraine; enables the partner relations and experience exchange between the experts in Poland and Ukraine. Thanks to the project, experts from Poland shall take part and shall make reports during the Conference on palliative care in Kyiv. Also, experts from Poland participated in 3 round tables (in Kyiv and Tcherkassy) with public health officials, doctors.
For development of the palliative care accordingly to international standards, the collaboration and information exchange with leading palliative care centers / experts is made. Among them:
Palliative care Program Director Alexander Wolf participated in the educational study visits to Poland and Slovak Republic. 9 hospices were visited.• Representative of the Association of palliative care participated in the Scientific Conference “Challenges for civic care in 20 century” (in Bydgoszcz, Poland).
• 12 – 18 November representatives of the All-Ukrainian Council for patients rights participated in the OMI-OSI seminar “Palliative care in Geriatrics” in Salzburg (Austria). The event was organised by Open Society Institute (OSI), USA.
• Representatives of the Association of palliative care participated in the scientific seminar “International course of pain treatment”, in Poland.
• In December the study visit of our organisations representatives was organised to Romania and Moldova. The goal of the visit: studying of the practical experience of foreing colleagues in palliative care.
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